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Wednesday, January 9, 2013

Were You Recently Diagnosed With PVNS?


PVNS is a Marathon Not a Sprint

It's helpful to understand that pvns is not a race in which you sprint, but a marathon that takes time, proper information, pacing and preparation in order to successfully reach the finish line with grace. PVNS is not a trip to the grocery store, but a family vacation in a foreign country with an undesirable passenger along for the ride. In car terms pvns is not a drag race but an Indy 500 which takes endurance.  

If you were told that you had to run a marathon tomorrow...that would freak you out pretty bad, right?  Well, being diagnosed with pvns elicits similar feelings. So the feelings that you are experiencing now are completely normal and healthy. I know it sucks, but just go with it.  

Not Cancer But...

I always hate when people say "it could be worse." "like this isn't bad enough? WTF." Sure I'm glad that it's not cancer that is going to kill me, but like cancer it has a voracious appetite and I can just envision it eating away at my joint like a Pac Man in a race.  Just when you think it has had it's fill...it starts eating away like a crazed bulimic again. How do we tame this monster? Take a deep breath and realize that you are going to learn how to control this beast by educating yourself and fighting back with knowledge. 

Informed Decisions

Making informed decisions in your treatment and long term care will give you the weapons to fight and prevent the pvns from sinking it's elongated villinous claws into your throbbing joint. Most feel overwhelmed and frightened as to how the pvns is going to effect their finances, lifestyle, family dynamics and socialization. This is understandable since your not so friendly carjacker is trying to gain control of the vehicle, but remember it's your life  and you can fight to regain control. Hopefully, you will be one of the fortunate people that will be able to kick this beast out of your car and tow him behind in a trailer and semi-forget about him. Understand that you will be driving your vehicle at times and at other times you will be an unwilling passenger.  However, it is up to you to design the road map in which you are going to travel. Learning to anticipate and plan for the possible potholes, financial cliffs and rugged terrain. This planning will make for a much more enjoyable trip. I didn’t want to take on this passenger/carjacker either but fortunately, most are in a country where they have access to some of the best medical care in the world and I am very thankful for that. 

Once again, pvns is not a sprinting race but a marathon that takes time, education, proper pacing and preparation in order to successfully guide your way gracefully to the finish line.


I am not a physician and the above is in no way to be taken as medical advise. This is my interpretation of what I have been told by my physicians and from what I have read. Always consult with a professional for case specific accurate information.


2 comments:

  1. Thank you for postin this. As a newcomer, im worried about the aliens in my knee and what would be the outcome two to five years from now. Will it come back? When will I have to go thru surgery again? How am I going to keep missing work n handle finances? I just got healed up from herniated L5/S1 disc and two bulging above that.Nevermind an old torn rotator cuff in left arm, recuring tendonitis in right forearm, and an old ankle injury in my right ankle. Now aliens in my left knee?!?! As many case studies ive read and pictures ive seen, and physically felt ill after, I feel buried. Like when my back went out, I want the pain done n move onto what my life was supposed to be. Right! But ghank you for verbalizing, in a sense, what ive been feeling. Im tired of folks saying "oh well. Not like u have cancer" or "well I have (this) wrong w me". Well buddy try having something soo rare hardly anyone knows how to treat it! Smh again thank you.

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